Well, we received news last week that Ian's PELD score fell from 18 to 14, meaning he likely also fell on the "priority" list at the transplant center. Doctors have suggested to us at this point that our little family is in it for the long haul, and we could be waiting years. We are taking the positive side of this, in that Ian is doing better and developing nicely. Why not enjoy the time we have with him healthy and not inhibited by concerns about getting sick?
Answer me why...
Just the thoughts I am having, but not the deeper thoughts in most cases... Also a place to provide updates on my son, Ian Herbst, who just received his liver transplant after a three year wait.
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